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Critter Corner: How Does the Guiding an Improved Dementia Experience (GUIDE) Model Help Dementia Patients and Caregivers?

kiwi mangoDear Kiwi and Mango,

I heard somewhere that the Centers for Medicare & Medicaid Services (CMS) launched the GUIDE Model for people with dementia and their caregivers? What is this all about?

Thanks for your help!

Cara Givva

Dear Cara,

People living with dementia often experience multiple chronic conditions, as well as high rates of hospitalization and emergency department visits, among other things. Caregivers of patients with dementia are also impacted by depression and stress associated with their roles, which negatively affects their health. The Centers for Medicare & Medicaid Services (CMS) recently released the Guiding an Improved Dementia Experience (GUIDE) Model to improve the quality of life of those living with dementia, while also hoping to ease the burden on caregivers!

The GUIDE Model is a new voluntary, nationwide, 8-year model for Medicare Part B providers that aims to improve the quality of life for people living with dementia, reduce the strain on unpaid caregivers, and help people remain in their homes and communities. It does so through assistance with care coordination and management, caregiver education and support, and respite services. The program currently has 390 participants.

Eligibility for the GUIDE Model

The GUIDE model features two tracks for Dementia Care Programs. The first is aimed at already established programs with experience serving dementia patients that meet GUIDE care delivery requirements, and the other involves developing new programs. People with Medicare must have dementia to be eligible for GUIDE participation and may be at any stage of dementia — mild, moderate, or severe. When a person with Medicare is first assessed for the GUIDE Model, CMS relies on a documented dementia diagnosis from a Medicare-enrolled practitioner. Medicare must be the participant’s primary payer, and participants cannot be enrolled if they are already residing in a nursing home.

The GUIDE Model aims to address the key drivers of poor-quality dementia care in these ways:

  • Improve quality of life for people living with dementia by addressing their behavioral health and functional needs, coordinating their care for dementia and other co-occurring conditions, and improving transitions between community, hospital, and other medical settings.
  • Delay long-term nursing home care for as long as appropriate by supporting caregivers and enabling people living with dementia to remain safely in their homes for as long as possible.
  • Addressing unpaid caregiver needs. Model participants are required to provide caregiver evidence-based education and support, including 24/7 access to a support line and training programs on best practices for caring for a loved one with dementia.
    • They reduce burden and strain on unpaid caregivers of people living with dementia by providing caregiver skills training and referrals to community-based social services and supports.
    • CMS pays model participants for respite services, which are temporary services provided to a beneficiary for the purpose of giving their unpaid caregiver breaks from their caregiving responsibilities.
  • Screening for health-related social needs. Model participants are required to screen beneficiaries for psychosocial needs and health-related social needs and help navigate them to local, community-based organizations to address these needs.
  • Delivering equitable care and addressing health disparities in dementia. CMS actively sought out eligible organizations providing care to underserved communities for participation in the GUIDE Model.

To learn more about the GUIDE Model, visit the DementiaCareAware website here.

Hope this is helpful,

Kiwi and Mango

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